Dear Colleagues,
Being part of a union family means more than contracts and benefits. We are also here to help support each other through hard times. Please see the information below with regards to Cameron whose family are also a part of our union family. Any support you can give is greatly appreciated.
CAMERON’S STORY & WAYS TO HELP:
Cameron has been diagnosed with Leigh Syndrome, a devastating and life-limiting illness. Cam’s diagnosis, specifically, is Mitochondrial DNA-Associated Leigh Syndrome and NARP.
For regular updates on Cameron, please subscribe and visit his caring bridge site often.
To do so, CLICK HERE or visit: https://www.caringbridge.org/visit/cameronkh
To leave prayers or well wishes for the family, please click on the “well wishes” tab at the top of the page in the purple bar. There are several other ways to help, too; see below.
If you have questions, thoughts, or concerns, please reach out to the “Cam Team.” Let’s let Cam have the full time and attention with his family.
Cam Team Initial Contacts:
Virginia Stever at vstever63@gmail.com
Sam Clink-Haug at samanthaclink13@gmail.com
WAYS TO HELP
- Donate on GoFundMe at https://www.gofundme.com/f/cameron-kisielhaug
Help cover current and upcoming expenses, including hospital, medical, and pharmaceutical bills, travel, and all travel-associated costs for trips to Michigan with Cam, medical support at home, and ways to celebrate Cam. - Postcards for Cordi! Cordi (Cam’s sister) needs some extra special love at this time too. Whether you travel or just stop in your local pharmacy or gift shop, postcards from everywhere and anywhere could brighten her day and make her feel special. She will love them. And as Cordi would say, “I can do that now. I’m 4, you know.”
Send postcards to:
Cordelia Kisiel-Haug
UUP Office
520 Lee Entrance, UB Commons, Suite 108
Amherst, NY 14228 - Purchase a door dash gift card and email it to Richard.C.Haug@gmail.com
Long nights make for hungry bellies. And let’s be honest, hospital food isn’t great (ever) or on repeat. - Buy a monthly cleaning for their house. It’s hard enough to clean your house with kids and dogs, but add how little they’re able to be home, and it gets tough. Plus, when they’re home, they’ll need to keep it extra clean for Cam. Interested in this? Email samanthaclink13@gmail.com to coordinate.
- Thoughts and Prayers. These go a long way in creating and maintaining positive energy for Cam and his family. You can visit the “well wishes” tab in the purple bar at the top to sign his digital card and leave a personalized message. Or you can reach out to Ginny at vstever63@gmail.com to receive a picture prayer card.
- Time. We know everyone can’t give money, so donate some time. There is no shortage of administrative tasks you can help with, whether you’re near or far. Contact Virginia or Sam to help with something on the list.
LEARN MORE
To learn more about Mitochondrial DNA-Associated Leigh Syndrome and NARP, visit: https://www.ncbi.nlm.nih.gov/books/NBK1173/
Other Sites:
United Mitochondrial Disease Foundation www.umdf.org
Mito Action www.mitoaction.org
Cure Mito www.curemito.org
www.aboutleighsyndrome.com
DONATE
https://www.gofundme.com/f/cameron-kisielhaug
In solidarity,
Ken Kern
Chapter President
UUP Buffalo Center